That was yesterday. Yesterday was definitely a, if it can go wrong it will, sort of day. Which sucked. First 13 woke REALLY early and taunted me. Then we turned up for an appointment with the neurologist to find out we should have been there the day before. As we marched back along the [...]
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I don’t know much except this: there are no easy answers, there are no right answers. You just do what you honestly believe is right and hope and pray that is the case. Then your heart breaks when it isn’t. There are no right alternatives. Every option brings hurt. Look after one, the one with [...]
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Actually, that is about the sum of it. Today was 13′s six month check up with her neurologist. Early out fo school, early out of work for Hub, trip home through crazy road works and another trip to the hospital. Then wait. And wait. And get really, really warm while we – WAIT. And then [...]
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(Say THAT fast when you’re annoyed.) So, how was your day? I hope it wasn’t like mine. Let’s not dwell on the item I ordered for 16 to be sent priority delivery because she needs it to go back to college has not arrived despite assurances we would have it today. Let’s not care that [...]
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Years ago, when 13 was small, I saw my future rather differently than I do now. With her first seizure at nine months and the uncertainty of the next year as increasing doses of medication were tried and a second one added to the first choice anti-convulsants, it became clear that 13′s life was going [...]
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