Epilepsy

So we waited for over an hour and it was all over in five minutes.

by Penbleth on Wednesday 12 October, 2011

Actually, that is about the sum of it. Today was 13′s six month check up with her neurologist. Early out fo school, early out of work for Hub, trip home through crazy road works and another trip to the hospital. Then wait. And wait. And get really, really warm while we – WAIT. And then [...]

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(Say THAT fast when you’re annoyed.) So, how was your day? I hope it wasn’t like mine. Let’s not dwell on the item I ordered for 16 to be sent priority delivery because she needs it to go back to college has not arrived despite assurances we would have it today. Let’s not care that [...]

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Reassessing options.

by Penbleth on Monday 22 August, 2011

Years ago, when 13 was small, I saw my future rather differently than I do now. With her first seizure at nine months and the uncertainty of the next year as increasing doses of medication were tried and a second one added to the first choice anti-convulsants, it became clear that 13′s life was going [...]

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The value.

by Penbleth on Sunday 24 July, 2011

A cynic, according to the wonderful Oscar Wilde is, “A man who knows the price of everything and the value of nothing.” (Lady Windermere’s Fan, 1892, Act III) Well certainly almost everything has a price but it is important to know its value. In order for us to attend 21′s graduation on Friday we had [...]

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Am I finally willing to admit I can do this?

by Penbleth on Tuesday 28 June, 2011

  12 will be 13 in August and I still worry if I’m parenting her in the best way possible. You may remember that I lived in dread of taking 12 to Surrey for assessment incase they replied with, “we’re keeping her.” I lived in dread of being called to go to the assessment in [...]

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