Surrey. © L McG-E. All rights reserved. (Click on name to see on black in lightroom.)
Which more or less sums up things for us.
Two sets of funding has been requested for two separate things, so I get to do some overlapping waiting, which saves on energy, let’s me conserve my fretting resources.
Waiting number one is related to respite. Some time ago it was decided, by social services not me, that they were going to apply to Health to pay for some of 12′s respite because of her behaviour and the related additional needs for staffing and support. I want you to note here, this is extra staffing for when THEY have 12 for respite, not for me. I get nothing extra. I have pointed out to them in the past that when they have had enough and can’t cope and send 12 home I continue to look after her. I have no one else to whom I can send 12 when I feel I’ve had enough.
Anyway, the first time the decision making panel met they decided they didn’t have enough information on Charlotte’s needs and the proposed new provision. Then they met again, with the extra information, and said 12 met the criteria but now they needed to do their own assessment. There’s nothing like having special needs to get you assessed by every type of provider under the sun, especially if they think they may have to be out some money.
Now we wait for the panel to meet for a THIRD time, with more information again, and see what they have to say after their own assessment. So much for having all the new plans up and running before the school breaks up in July.
Waiting number two is from Surrey.
They rang last week and spoke to Hub. Apparently they would like to have 12 back for five days to do some longer telemetry, look at her sleeping patterns and see what the psychologist has to say about her behaviour. Then they might want to have her back again. Or not. All they need is to have the funding agreed. Yes, I said, “all”, we all know how straight forward getting funding is. I’m not holding my breath.
Saves me looking for things to go over and over in my head, I suppose.
© 2011, Penbleth / L. McG.-E.. All rights reserved.
Audra - I’m so sorry you have to deal with the stress of waiting for funding for two major things. I hope that it is all resolved quickly and in the way that you want it to go.
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